Opt-out of centralised NHS records

The government are centralising our medical information onto something called the “NHS Spine”. So our entire NHS medical histories will be moved to this system opening it up to general access for millions more employees of:

  • various government agencies including the police and social workers
  • private investigators, media organisations and other commercial entities.

Well, you apparently have the legal right to opt out of this “data rape”:

In June 2005, FIPR developed an opt-out letter to send to the Secretary of State. People who sent this off have been fobbed off. We now recommend that you opt out via your GP. Ask your GP to enter into your record the code 93C3 (“refused consent for upload to national shared electronic record”). You can also ask for your address and phone number to be kept off the NHS internal directory, and for your hospital records also to not be uploaded to central systems: see here for details. We encourage you to opt out even if you have nothing to hide; if only people who do have something embarrassing in their records opt out, then doing so will carry a stigma.

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